AGRE for Families
The Autism Genetic Resource Exchange (AGRE) is a research program for families who have two or more children on the autism spectrum. One of the biggest challenges for researchers is trying to recruit families and gather information for their research in a timely manner. AGRE helps accelerate the pace of autism research by taking these time-consuming steps out of the hands of researchers, so they can spend their time and effort analyzing the data and looking for answers now. AGRE gathers DNA, clinical, and medical information from families throughout the United States, making it the world's first collaborative resource for autism research worldwide.
* Please note that AGRE is not enrolling any new families into the program at the present time, due to resource limitations. Please check back on our website for future updates regarding enrollment of new families.
Why I Participate in AGRE
When my sons (2 and 4 years old at the time) were first diagnosed it was a nightmare. I had a baby and two very disabled toddlers on my hands. Once they were diagnosed, a flood of early intervention and advocacy services came to our door. This was a huge relief to me and my husband. Up to that point we had been struggling to make the medical community understand that there was something wrong with the boys. Kyle (husband) and I were very happy when AGRE offered to draw blood and add our information to their database. The more good people working on this devastating disease the better we say! So with three children in diapers we began our long journey one day at a time...
Continue reading this family story here.
Autism Research Updates: